Thursday, July 08, 2010

Big Kid---The Neverending Story

My boy is back in the hospital.


Last Friday night, Kitty took him to the emergency room down in the city, because he had swollen lymph nodes, was coughing up a little bit of blood, and finding it hard to breath. The took x-rays of his chest (no pneumonia, thank God) told him he had bronchitis, sent him home with a script for some strong antibiotics and told him to follow up with his doctor within 5 days.

They didn't examine his lymph nodes or do any blood work. Kitty was quite put out (and rightly so), that they kept trying to take his oxygen away from him, even though she insisted that he needed it. Luckily, she stayed with him and kept a watchful eye.

He came home for the weekend so we could care for him and spent most of the time sleeping. On Monday, he was ready to go back to Kitty's. Early Tuesday morning, he called me, frightened because he couldn't breath when he was laying down. He'd been up all night. Hubby went down to the city and got him and I made an appointment to see our family doc right away.

He looked really puffy, and was a bit altered. I put it down to a night with no sleep, but the puffiness was worrying me. His heart rate was rapid (we check it with a pulse-ox moniter every few hours), and I pulled the doctor aside when we got there because water-retention, the inability to breath when lying down and rapid heart rate were all symptoms I had when I was diagnosed with heart failure a couple of years ago.

The doc ordered a bunch of tests (scans of his lymph nodes, lungs and heart) to be done the next morning, gave me a handful of referrals to specialists, and prescribed a diuretic. At that point, Big Kid was pretty sick, but not urgently so. We'd have to rig something up so he could sleep semi-sitting and try to keep him comfortable. We had to crank his oxygen up to 5 liters.

I was up all night with him. He'd sleep for 40 minutes and then wake up disoriented and in pain. By the time the morning came, I could actually hear the fluid in his lungs when he was breathing, and his neck was huge. So I took him to the emergency room at our small regional hospital.

They ran a bunch of tests. He was full of fluid, and his lymph nodes and tonsils had swelled up so big that they were blocking his airway. They were planning on trying a c-pap (which forces air down into the lungs by mask), but if that didn't work, they were going to have to put another trach in.

In the meantime, they were making plans to transport him down into the city by ambulance, because some of his symptoms DID seem to have cardiac involvement, and they weren't equipped to handle it there.

Right about the time they were finishing with his EKG (which was bafflingly normal) his bloodwork came in.

The look of surprise on the doctor's face was truly a sight to see.

"You're not going to believe this", he said to me and the nurse. "Big Kid has Mono."

Mono? Are you freaking kidding me? That with a side of secondary bronchial infection. With his compromised immune system, he has a raging case of both.

Soooo....they decided they could treat him right here, thank Goodness.

Because his oxygen and CO were messed up, his kidneys weren't functioning properly, causing him to retain a large amount of fluids. You can't really treat Mono, because it's a virus, but you can treat the symptoms.

He couldn't sleep on his back, because the pressure from the tonsils and lymph nodes were crushing his windpipe.

They've got him in an isolation ward because he is highly infectious. After he was settled in, Hubby and I brought him a fan, his tunes, and some magazines. He was a lot more alert last night and feeling better with pain meds. They had to shave off his beard for the mask, but he didn't even blink an eye at it.

Oh and I almost forgot. It seems like sometime between his last bloodwork and this, Big Kid has developed diabetes. Something we're going to have to deal with when this crisis is over. ::sigh::

So here it is, 8 months later, and I'm getting ready to trek back to the hospital to glove, gown, and mask up again. Only this time, I don't have to drive down into the city, but half a mile down the highway(a blessing).

If you have a moment to spare, good wishes and healing prayers would be truly appreciated, My Friends.


Jeanie said...

My first thought was that you sure don't need this, but you already know that. Lots of good thought and prayers coming your way.

Kim Wombles said...

Thinking of you and yours and sending you big hugs. ((()))

Rootietoot said...

Ahhh boy...yeah, prayers.

Heather said...

Hoping the best for you guys. Wow...mono? Who would have guessed. If your mountains were closer to my mountains I would drive over and give you a big hug and a big drink.

ParkerMama said...

Hoping things are looking up today. I know how hard it is.

I wish we were closer and I could come over and lend a hand.

We miss you at 5MFSN, but TOTALLY understand that family and your sanity come first.



Joanna Jenkins said...

Oh ATM.... I am so sorry to hear this but grateful Big Kid is close to home.

So much to figure out. BIg Sigh. I'm praying and cheering you on.

xoxoxo jj

Kim Ayres said...

My thoughts are with you ((hugs))

diane said...

I'm so sorry for all of Big Kid's health worries. My heart goes out to all of you with thoughts & prayers of love and good health. xo d

The Quacks of Life said...


Chris H said...

Far out, what else can go wrong for your son! I hope he recovers quickly from this latest set back.

Jan said...

Sending everything positive your way.

Jennifer Jayhawk said...

I am so sorry!!!

I have three older brothers and two boys of my own. I get the whole mother/boy thing.

I will pray for healing and good wishes to come your way.

Hang in there my friend.

Valerie Marie said...

Dear BK! All my good thoughts and prayers for you. You have the best mum in the world and you are strong enough to overcome all this.
((BK + ATM))

Warner (aka ntsc) said...

My thoughts are with you.

Star said...

All good thought and hugs coming your way.

Anonymous said...

I can't believe this. You poor thing, you must be so stressed. I will be praying for you all the way through this XXX

Brenda said...

Sending loads of prayers and well wishes to YOU and big kid. You are the greatest Mom on earth ATM.

Anonymous said...

Best wishes for a speedy recovery.

gayle said...

Thinking and praying!! So sorry to hear this!!