Saturday, November 28, 2009
I'm bone tired. I know I keep saying this, but really I am. I'm sorry I didn't post an update this morning, but my a$$ is dragging all over the place.
I spent the morning yesterday with Big Kid, and came home and fell into bed. I can't stop waking up at 2:30 or 3:00am, like I was doing when he was in the ICU. I try to go back to sleep, but it's hopeless. By 1 in the afternoon, I'm practically comatose.
When I woke up yesterday from my nap, Hubby and the guys had the tree up. It's always been our tradition to put the tree up the day after Thanksgiving, and then set a time over the weekend where we get together (moans from the teenagers and all) to decorate it.
When I woke up today from my nap, the boys had decorated it with all the care they could just to please me. I know they need the normalcy, but this was the first Christmas where I wasn't directing, and the first where Big Kid wasn't there complaining about the whole thing. gah. On one hand, I'm so touched that they took it in hand, on the other, I hate that the Big Kid isn't a part of it.
He's going to hate it too.
I know, I know, I'm being a big freaking crybaby.
I just want our life back, with everybody intact.
The good news is that the Kid is able to make about 4-6 steps on his own. Yesterday the physical therapist and he made two laps back and forth in the hallway with a walker. He said his "lungs were tired" and he had to go back to bed.
Today, when I got there early, he was seated in his chair and very proud that he had gotten there on his own. He was going to refuse a shower, but I talked him into one.
He didn't want to ride the wheelchair to the big therapy shower, so we got an extension on his oxygen hose, got a chair, and I helped scrub him down in the shower that was in the bathroom in his room.
The RT came in to look at his trach wound. He still has a big hole in his throat.
Then we settled down---all clean and shiny---and watched some of the "Dirty Jobs" marathon. ;-)
This afternoon, they took him off oxygen completely. He was really psyched, but he only lasted about 1 1/2 hours before his oxygen level went down to 75. It's just going to take some time.
He's trying hard. What I don't get is that there are no physical or occupational therapists to work with him on the weekends. Seriously, they just expect him to lie in bed and do whatever over the weekends and holidays.
This is advertised as a "care hospital". Healing doesn't take weekends off. Why don't they have people there 7 days a week to do this stuff? Big Kid was restless, so I got permission and went and got hand weights from the "gym".