Another morning, and he's still hanging in there. I can't tell you how grateful we are to have so many people thinking about Big Kid and Us.
He had a pretty good day yesterday. His heart rate and blood pressure were all over the place, but they were able to control it. He was on 42% oxygen and maintained a saturation level of about 94% throughout most of the day.
A big problem has been keeping him sedated. Every hour, almost on the hour, he suddenly wakes up from the paralytic and is immediately struggling. Which of course, would make his heart rate and blood pressure shoot up, and messed with his saturation levels so they had to dial the oxygen back up to get him to where he was. Apparently it was pretty bad last night, so they switched him to something else that's working.
Little Guy wrote the kid a beautiful letter. He doesn't fully understand why he's not allowed to go to the hospital, but we're trying. Grandma is going to pick him up today and take him back with her for a few days. They're going to try to keep each other busy so that they don't constantly worry.
I read Big Kid the letter, and his heart rate went up 10 beats as I was reading, and down when I stopped. I hope he was able to hear all the love his brother was sending to him.
Today the docs are going to try to switch him back to the bi-level ventilator. This will be a big step in the right direction.
Please keep your fingers crossed!