The days just seem to be running into one another. I looked at the calender yesterday and thought Holy Smokes! We're a third of the way into November! It's like we're stuck in some freaky limbo while the rest of the world speeds by. Thanks again for hanging in there with us.
No improvement on the lungs or getting the oxygen down. Big Kid can't seem to maintain his saturation levels under 45-50% oxygen. The doctors are planning on doing a tracheostomy on Wednesday.
The bundle of screams are back.
Logically I understand the reasons for this. It will be easier to care for. The back of Big Kid's mouth and throat are getting pretty beat up. It looks like he's going to be on the ventilator longer than hoped. He's not sicker, it's simply taking longer to get better.
I just can't get past the idea that they're going to cut into his throat. His throat.
On a more positive note, yesterday his nurse and I stood on opposite sides of his bed holding his hands.
"Big Kid, can you move the toes on your left foot?" She asked. He moved the toes on his right foot.
"That's great! Can you move the toes on your other left foot?" He did. ;-)
Two good friends in blogland have swine flu hit their families. If you could send some healing thoughts and prayers to Kim's son and Ashley's Mom, I would be most grateful.
And thank you for all your kind blessings.
18 comments:
hopefully this will not be necessary, fingers crossed. it could just be a bump in the road to recovery. maybe today will be better.
thinking of you.
:-)
Still keeping you in my thoughts and prayers. Stay strong.
Its kinda neat that Big Kid responded when asked to move his feet this way and that. It must be very hard for him to lay there for so long in discomfort. How about reading to him?
fingers crossed and prayers continue....
Continuing to send positive energy and good thoughts. I do this all the time. xoxo
I hope whatever they decide to do goes well and works. Great that he is responding. Keep your spirits up.
Hi Attila,
Please maintain your courage and strength…that’s easier said than done, I realize, but your vigilance is helping Big Kid hold his own throughout this ordeal. Time is a friend as well as a villain.
(((hugs))))
But wiggling toes!
Having had my neck sliced by a surgeon once before, I bet there's almost NO visible scar. Still praying.
Thanks for the wishes, but we're fine - Rogan's on the mend - keep your energy for BK
((hugs))
Two left feet, huh? I know that feeling :-)
A trach sounds very scary but I have great faith in the doctors so I hope it's easy on Big Kid and brings him closer to recovery-- and the opportunity to dance with joy on his way out of the hospital.
Stay strong Attila. You are going a great job. We're cheering you on.
xo
Glad to see you still have a sense of humor! Other left foot - great stuff!
Prayers and hugs continue - will visit your friends today and send them good thoughts as well!
You are all in my prayers hope you get some good news soon. Take care, Terri
What a relief to read he's hanging tough. Still spinning the prayer wheel for him. For all of you.
my thoughts and prayers are with all of you....so very very much !
Teeny improvements. It's good you're beginning to add "on a positive note". Big Kid might not be moving very quickly in the right direction, but he's NOT moving in the wrong direction!
As always prayers coming your way!
I am so sorry for your son's illness. I don't know if this helps or not but trach's generally heal very quickly once they are removed and I am pretty sure (unless they do some different kind of trach) that the removal does not take surgery, it will just come right out. Lots of prayers your way.
I wanted to share this great website about traches, how they're done, what they do how to care for them etc. I found it really helped me understand about the whole procedure and everything following when the boy I worked with was seriously ill the hospital a few years ago. Hope it helps :) Still praying for everyone!
AmyMcD
Look at it this way...men tend to do things their way and at their own pace. ;) He'll get there. I know it's hard to be patient having waited so long already but he will be okay. xoxoxoxo
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