Eh, two steps forward, one step back again. But as one commenter wrote---it's still one step forward.
They weren't able to lower the volume enough yesterday to do another SBT, so the trach is in. He's holding steady at 50% oxygen on the general vent.
The docs are going to work on lowering his sedation during the next couple of days so that he'll be more conscious and hopefully able to communicate. Soon a physical therapist is going to come in and assess his condition.
His feet are still moving constantly. Up and down. Up and down. I think he's crossed the state line and is somewhere in Nebraska. ;-)
Thanks so much for your continued good thoughts and prayers.
19 comments:
Dear ATM! I was a few weeks (since mid-october) without internet at home. I'm so sorry! I pray for your son! With all my love. Valérie Marie
Perhaps the trach will make him more comfortable.
Best wishes and thoughts and prayers, and another virtual casserole!
Will think of you and yours today and hope that today sees improvement. Sorry about the trach.
I was really hoping they wouldn't have to do the trach, but since they did, maybe he will be more comfortable. You are all constantly in my thoughts and prayers.
Ashley has improved greatly from her bout with the flu. I on the other hand, am heading back to the doctor today because my breathing has worsened over night.
I'm really, really tired of this flu crap...
Thinking of you, as you ride this emotional roller coaster, but overall, he is staying stable and and strong. Keeping the HOPE, right along with you, and I know in my heart he will be okay.
Keeping you in my thoughts and prayers, constantly.
Love,
Cheryl
Just wanted you to know I check your blog and pray daily.
Hopefully, the trach will make a big difference in his oxygen levels. I had my fingers crossed that they wouldn't have to do it, but since it became necessary, I'm hoping he will take bigger and bigger baby steps because of it.
Sending lots of positive energy your way!
I'm sorry they did have to move forward with the trach, as like everyone else I was really hoping it wouldn't be needed. I'm sure seeing him with one is very difficult for you and your husband but it could help him recover in a way the other system wasn't.
I check for new posts from you every single day as I can't get your family out of my mind. All my prayers.
Keep saying what you started this post with, "Two steps forward then one step back is still one step forward!" I don't know who orignially said that but it's a fantastic way to look at this situation. Carry that with you.
I'm sorry they did have to move forward with the trach, as like everyone else I was really hoping it wouldn't be needed. I'm sure seeing him with one is very difficult for you and your husband but it could help him recover in a way the other system wasn't.
I check for new posts from you every single day as I can't get your family out of my mind. All my prayers.
Keep saying what you started this post with, "Two steps forward then one step back is still one step forward!" I don't know who orignially said that but it's a fantastic way to look at this situation. Carry that with you.
Anything that will make him breathe easier and be on the road to recovery sooner!!
I hope the trach makes things better and that he will become calmer and able to communicate a bit. I will be wishing the best for you today.
Hi Attila,
So sorry that your son had to have a trach put in but perhaps as Rootietoot commented, it’ll make him more comfortable. It’s you and Mr. Attila that are justifiably apprehensive with the situation.
Big Kid’s feet are undoubtedly moving up and down, up and down, because he’s anxious to be out of the hospital.
Two steps forward, one step back…hopefully today there’ll be none in the wrong direction. (((hugs)))
Well, more consciousness is good, right? More comfort--will pray for that.
Attila, One day at a time, right-- Like so many others, I am sending love and prayers and angels and positive energy to Big Kid, you and your family.
xoxoxo
Every step counts, back and forward... *hugs*
HUGS and HOPES!!! Sending everything I can your way!!
Still thinking and praying for you and big guy.
I love the "virtual casserole" that is awesome.
Still in my prayers.
continued ((hugs))
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