Today was the first day in almost two weeks that I rolled out of bed without a huge ball of screams stuck in my chest. I was finally able to sleep until 4am instead of waking up at 2 or 3.
They didn't switch Big Kid to the bi-level vent yesterday. They actually went to the regular vent. And so far, he's tolerating it.
The doctor said that this was a big step in the right direction, and that his x-rays were showing a little more improvement.
Still critical, but a little more than stable. Cautious hope, but hope nonetheless.
Since the paralytic wore off, he's been all over the place trying to get comfortable. He's still sedated, but his body is trying to propel him out of bed and get him the heck out of there. ;-)
I wanted to answer a few questions from some of you who are new to my blog and haven't gotten to know our family before this.
Big Kid was diagnosed with rapid-cycling bi-polar disorder and a severe panic disorder after he had a big mental breakdown away at college when he was 19. It took us quite a while to get him somewhat stable with meds, and last year in the fall we took the advice of his doctors and moved him out of our home and into his own apartment. He was there for about 10 months and then moved in with his girlfriend.
This catastrophe is the result of complications of H1N1. The pneumonia is viral and not bacterial.
Thank you all for your suggestions about music and his Ipod. Right now, the goal is to keep him calm and not fighting the vent. Any outside stimulus (lights, music, loud voices) seem to agitate him. Personally, I wonder if it's because of his ADHD. Although he's receiving all his other regular psychotropic meds intravenously, he's not receiving any stimulant medication for that for obvious reasons. I also worry (with horror) that he's having constant panic attacks as well. A friend with personal experience told us that the liquid form of anti-anxiety meds (clonopin and ativan) affected her differently when she was in the hospital.
I can't begin to tell you how much your support has meant and continues to mean for us. Sitting in that ICU room hour after hour is very isolating. It's a comfort to know that we have many friends outside who are thinking about our boy. Thank you from the bottom of my heart.
I'm still really pissed off at Pa Ingalls, though.