Yesterday was a good day. I let Hubby sleep in and went into the city early myself. Poor man, he's so tired too, and he's been such a rock for me.
When I got there, I bent over Big Kid and did our "thing". I haven't done it since I wrote about it earlier, because it's powerful, and I don't want to waste it.
If he hadn't been restrained, he would have shot right up. He had my hand in a kung-fu grip and struggled to sit. Whoa!
His nurse came in, and rushed to adjust his sedation.
"Lay back, Honey, " I said. "Do you know where you are?" He nodded his head.
"Do you know who I am?" He nodded his head, and tried to form a word around the tubes.
It looked like he said Mommy. Maybe that's just wishful thinking on my part. He finally gave me my thumb back and he slipped off to sleep.
His feet and legs are in constant motion, like he's slowly riding a bicycle. One knee comes up and down. Then the other. He has those pressure thingys on his calves to keep him from getting blood clots in his legs and he rubs them together like he's trying to get them off. As long as he isn't panicking, they're not too worried about the movement. It's helping his circulation.
My mom brought Little Guy to the hospital late in the afternoon so I could take him home with me. Hubby had just gotten there to take a shift with Big Kid. Since it was Sunday, there were very few people in this wing, and we decided to take a chance and let him see his brother. He's been obsessing on it terribly, and we've been worried that maybe his imagination has gotten the better of him.
So we did everything but wrap him in Saran Wrap, and whisked him up to the ICU. We showed him the tubes and the IVs and explained what each was doing. He held Big Kid's hand and talked to him in his Marge Simpson voice. Then I rushed him home and practically hosed him down. ;-)
There's been no changes on his x-ray, and he's holding at 45% oxygen on the bi-level vent. They've been able to wean off some of the pressure needed to keep his lower lungs open. Baby steps.
When he grabbed me, his grip was strong. Really strong. That more than anything has given me hope today---hope that he can beat this.