Again, my most heartfelt thanks to you all for your words of hope and encouragement. It's 4am again, and I'm preparing to go back down into the city.
Yesterday was a tough day. Hubby and I got there bright and early, and things seemed to be looking fairly good. By the afternoon, inexplicably, Big Kid's stats plummeted for no apparent reason. They did an X-ray to determine if one of his lungs had collapsed, but thankfully, they were negative.
It took them a little while to stabilize him again, and Hubby and I stayed into the night to sit with him. Then we came home and just fell into bed.
My mom offered to take Little Guy for a few days, and we're thinking that this might be a good idea. Since he only attends his transitional classes for a few hours 3 days a week, arranging consistent care is difficult and means that Hubby and I have to split our time with Big Kid. We're finding that it's easier to be there together to support each other if things are going rough. Although Little Guy is pretty self-sufficient, the burden of watching over him has fallen on The Happening Dude, and it's hard for him too.
On a brighter note, I've been worrying about the woman who I held hands with in the Family Room days ago. I hadn't seen her or her husband for a couple of days which meant that either her daughter had recovered enough to move out of the ICU or had passed away.
We ran into her and her husband after getting out of the hospital for a few minutes to get some air. Their daughter was recovering and had been moved to a different part of the facility. ThankyouthankyouthankyouGod!
And thank all of YOU for being such good friends.
28 comments:
Thanks for the update. Prayers are with you, all the time. Thinking about you and sending healthy, positive vibes your way.....all day.
Love,
Cheryl
praying that your friends daughter will soon have some company outside of the ICU :)
Amy
We're constantly with you in mind and spirit until Big Guy is well again.
I'm so glad to get an update. While we're strangers to one another, I think of you and Big Kid often.
You're in my prayers.
I'm glad everyone, especially Big Kid, are keeping strong. I hope all surprises in the future have at least moderately nice endings like woman in family room.
prayers
Thanksgiving is not a time of year but an attitude of the heart. Hopefully, the support and well wishes from your acquaintances in cyberspace will help guide you through your travails…
(((hugs))) abound.
I have been with a child in the hospital. I continue to send you and your family love and care, and to visualize BK well and your family home together.
I wish I could do more, trust me!
Will remain here, no worries, you're not alone and the good thoughts are sent regularly. :-)
Safe travels to you and your husband while you make your trips to and from the city. And continued prayers for Big Kid. I'm cheering you all on.
xoxoxoxoxo
Hugs....
I came over from Joanna's page, I'm sending you as much good karma as I can muster and thinking of you. cxc
Glad to hear about their daughter. Keep strong.
Thank you for taking time to keep your blog going. As much as it is therapy for you, it is also connecting to so many people, in ways you will never know.
I was away from the Internet over the weekend, but was thinking about you & wishing so hard for good news. I just don't understand why this is happening. Big Kid knows he is so loved & needed by his family, he just has to keep getting stronger. Sending more love all my best thoughts.
Still praying for all of you!
Whatever you can do to make this easier – more bearable – do. Be with your husband when you’re there. You need each other. Just as your son needs to know you are there – feel your presence & support.
Oh Attila, there's nothing worse than seeing one of your babies in danger, my heart goes out to you! It goes without saying, I'll be thinking of you all; sending love, hugs and good vibes!
That's good news about the other family. And I've been wondering about Little Guy, so thanks for the update on him, too.
Thanks for the update! ((Hugs))
Your family is in my thoughts.
I hope today goes well - slow, but steady - stable is good! You are in our daily prayers. Thank goodness you have family who can help with Little Guy.
Please God, give this young man a chance at life. Heal him.
I cannot get Big Guy, you and your family out of my mind. It is just so stunning.
I have a question for those of you reading this blog. Are you getting the H1N1 vaccine? We have two college age boys (the same age range). My 90 year old Mom refuses to get the vaccine (she read something somewhere). I would appreciate any feedback.
Attila, my heart aches for what you are going through. I cannot imagine being in your place. I am praying constantly for you and your family.
Thanks for the update. You and your family are never far from my thoughts.
{{{hugs}}}
That happy day is just around the corner when The Big Guy smiles at you and says Hi Mom. I know it. I can feel it. It wont be long. Can he have some orange juice, I wonder. How long can they keep him totally sedated?
have been watching the updates over at joanna's and thought i would drop by to let you know we were praying. stay strong.
I have been so wrapped up in my own BS that I have failed to read my favorite blogs! I am so SORRY to hear about Big Kid! I am not a praying man but I will send you all teh good vibes, and happy thoughts I can. Be strong!
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