Monday, November 16, 2009

Day 24


The G-tube procedure went well, and the kid had a restful day yesterday. It's probably going to be a couple of days until the Risperidone totally kicks in, so they're keeping him lightly sedated.

They took Big Kid to get a CT done late last night---which is the first time he's been stable enough to be transferred out of the room for a procedure. All of the other ones have been done in the room with portable units. We'll get the results this morning.

There was a little improvement on his X-rays again----after hitting another plateau, he's starting more baby steps in the right direction. They've been suctioning a large amount of crap out of his chest yesterday and through the night, which is really good. He's on 45% oxygen right now, and that's really good too.

I wasn't feeling very well yesterday. I don't know if it was a result of the vaccination I got a few days ago, or the onset of something else. Body aches, chills, massive headache---you know the drill. I can't take any over-the-counter cold and flu medications because of my heart, so I just went back to bed and conked out under plenty of covers for around 16 hours with a couple of periods of wakefulness in between. Hubby braved the snowy roads and stayed with the Big Kid until they brought him back from the CT and tucked him in.

Feeling just fine this morning, and we're going to head in late after the sun has had a chance to melt some of the ice on the roads.

I've armed myself with a secret weapon----printed out a haggis recipe and tucked it in my purse. If I feel like I'm going to lose my cool, I'm going to pull it out and measure the offender---Sweetmeats or any other---for a pot. I got lots of pots to choose from. I've even combed my hair.

But it seems like thanks to you all, my reservoir of patience has been refilled. Bless you.

18 comments:

Jeanie said...

I like that you used "really good" a couple of times...it is great that there is some good. I hope today goes well and that you don't have to pull out your recipe. Be careful on the icy roads.

Corina Becker said...

things are starting to look up, it seems.

Take care, dear. I'll continue to keep you, Big Kid and your family in my thoughts and prayers.

litzi said...

Good to learn Big Kid is down to 45% oxygen and was able to be moved out of his room for a procedure…Baby Steps forward are encouraging!

Obviously you were exhausted (mentally as well as physically) if you slept for 16 hours. That’s 2 nights of shuteye.

If you do manage to find time to concoct a pot of haggis, I’ll pass. Apparently, it’s an acquired taste that most individuals find gruesome.

yorksnbeans said...

Just hearing about them suctioning the crap out, made ME breathe a bit better!! Hopefully, it will have the same effect on Big Kid! :-)

Willoughby said...

Sounds like things are headed in the right direction. Those baby steps are starting to add up!

I'm glad you're feeling better after getting a long rest. Take care of yourself.

Charlie said...

Yay for Big Kid! Yay for you!

Kim Ayres said...

I'm pleased you liked the haggis suggestion :)

Green Girl in Wisconsin said...

Your stress is catching up with your body. Take care of yourself!
Scads of stuff getting suctioned out is good news--things are loosening up. He's winning!

St Jude said...

Kim is right, haggis works sweetie. I'm so glad that things are starting to move forward.

Take care of yourself too, you'll be no good to anyone especially big kid if you wear yourself out. A big hug to you... stop squirming, it's good for you. ;0}

amy said...

So encouraging to hear!! GO Big Kid!!

Please take care of yourself :) HUGS.

Clippy Mat said...

just catching up on your last few posts. what a lot of ups and downs; trials and tribulations. hope you are hanging in there.
thinking of you.
:-)

Joanna Jenkins said...

Dare I say Big Kid is about to turn the corner?!?!?! Fingers and toes crossed for continued baby steps in a positive direction.

And glad to hear you got some rest and your battery recharged. Take care of yourself. We're cheering you ALL on.

xo

Alix said...

Great news. And the combing your hair part? The cherry on top!

Cloudy said...

Checking in after being away a few days. The crazy roller coaster ride you guys are on must be absolutely agonizing at times & is just so unbelievable to me. Keep holding on to the good news.

debra said...

did Kim send you an authentic recipe for haggis?
I am so glad you are feeling better. I think of your family all the time and send you all the good thoughts I can muster.

Anonymous said...

Its grand that you noticed Big Kid wasn't getting his proper medication without which he was overreacting. This is taking a toll on your health but its clear that your presence is valuable.

Beth said...

Amazing what a good sleep can do to restore your spirits and energy level.
Also wonderful that you still retain your great sense of humour!
(Prayers continue.)

Cheryl said...

Mother usually knows best, you were so right on about the risperidone. I'm so glad they listened to you. I'm thrilled about the improvements Big Kid is making, it really seems he is making good progress.

I'm also glad you let yourself go under those covers and let yourself sleep. You needed it and it gave you much needed energy. What a sweet man you have, to stay and tuck Big Kid in.

Still keeping you close to my heart and in my prayers.
XXXXXXX