Showing posts with label Blogging Against Disabilism. Show all posts
Showing posts with label Blogging Against Disabilism. Show all posts

Sunday, May 01, 2011

Blogging Against Disabilism---The Road to Hell....

Good intentions are always better than bad ones. But as the saying goes, the road to hell is paved with them.

My middle son has autism and some cognitive delays. He's been fully included in school since the first grade, with a para-educator. I've written a lot about him over the years, most especially about the fact that he has a passion for food and people and Disney Princesses. And his ever-present foot phobia. ;-)

Little Guy is a wonderful cook. He pores over cookbooks, and creates his own recipes and culinary masterpieces in our kitchen. He needs a bit of supervision with the stove, oven and chef's knives (Hubby used to own a resteraunt and we have a very sharp jumbo professional set), mostly because he hasn't had any formal training. As a protective mom, I don't want to find a finger in a casserole or have the house burn down.



A few of his creations over the years have been fantastically crappy, but he continues to have a lot of willing guinea pigs here. LOL

Most of his creations are marvelous. And his plate presentation is innovative and superb.

He is now 21, and has started in a pilot culinary school program for people who have disabilities that is down the mountain in the big city. There are 2 teachers to 4 students---and it's an extraordinary curriculum. While he was waiting for it to start and before they offered him a place as a student, however, he took a weekly adult baking course at the facility last fall semester and it almost tanked his chances of getting into the main program.

As the term was drawing to a close, the instructor spoke with both my son's transitions leader and his DVR caseworker, and expressed concerns that this might not be the right program or career path for him.

The alleged problem(s)?

Number one---Little Guy didn't like taking things out of the oven. He seemed fearful of getting burned.

Number two---Every time he wiped the counters during clean-up, he insisted on getting a clean dry towel from storage instead of using the one he just used 20 minutes ago.

Frankly, I was a little annoyed.

Well no, I guess that's an understatement. I was a LOT annoyed. I talked with his instructor quite a few times during the semester and she never said a word about her concerns to me. Or apparently to my son. He didn't have a clue.

So our transitions leader had a sit down with her and this is how it shook out:

The instructor never said anything to Little Guy because she was afraid of hurting his feelings. I guess she just assumed that the issues should resolve themselves on their own, because she never even addressed him about his resistance to these tasks. But her worry about his feelings almost cost him an opportunity to pursue training in the one true career he has a passion (and talent) for.

I sat the kid down and had a conversation with him.

"XXXX said that you seemed to be afraid to take things out of the oven. You take things out of the oven here all the time. Is there something different that's worrying you?"

Turns out that the class uses oven mitts he's not comfortable with because he has really big hands and they're tight. At home he has his own "Ove-Gloves" (an As Seen On TV product) that are a bit stretchy and fit comfortably. So I called the instructor and asked if it would be an issue if he brought his own oven mitts to class. Problem solved.

I asked him about the second problem, the one about having to use brand-new towels when cleaning up after himself instead of using the one he started with. This was a little more complicated. It seems that when we drummed the "germ" thing (the necessity to constantly wash his hands) into him last year when his older brother almost died from H1N1, it kind of morphed into the knowledge base he already had from Brawny commercials and home ec classes.



Used rags are more germy than paper towels. Germs are REALLY bad.

I explained to him that in a commercial kitchen environment, the pace has to be fast and that it's ok to use a towel you used 20 minutes ago. If there's debris on it, shake it out in the trash and rinse it out well in the sink. Only if it's really filthy would it be ok to go get a new one (I certainly wouldn't want my food to be prepared on a space that was wiped with a filthy rag). Problem solved.

In my opinion, the instructor must have been new to teaching students who have different learning styles although the school said not. You'd think that as soon as the issues started cropping up, she'd say something to me as an involved and engaged parent. Who but those closest to Little Guy would be in the best position to give communication tips? If I had known weeks earlier, we could have resolved it and he could have been performing at his best potential, instead of possibly writing him out of the program due to her perception of what his feelings might be.

Does he throw tantrums? Is he emotionally fragile? No to both. So WTF?

My son is there to learn. You are there to teach him. You're not going to hurt his feelings by correcting him, that is part of your function as a teacher, and if I had known about this earlier I could have reassured you about it. As a "seasoned" educator to people who have learning differences, why didn't you know that there's more than one way to skin a cat (culinary pun unintended)?

After complaining to a friend of mine who is in the business of finding job placements for young people who have disabilities, he confessed an alarming trend that he has been battling.

He goes regularly to observe the clients he places, just in case they need a little extra job-coaching to be good employees. In several of the placements, he's noticed that the staff treat his client not as a fellow-employee, but more like a younger sibling.

Meaning, if the job isn't done right, they let it slide instead of insisting that he or she complete the tasks that they are being paid for. And they talk to them in "baby" voices.

He questioned the employers and as it turns out that they---like Little Guy's previous instructor---are afraid of seeming to "be mean" and "hurting feelings".

Gah.

Like I said the intentions are good, but it's disabilism at it's finest (or worst).

Not insisting that an employee (or student) perform to his or her potential is bad in the long term, because it won't help them to grow or learn to be employable in the future. If you are kind and respectful in your tone and your terms (Basic Civility 101), correcting doesn't have to involve hurting feelings.

Why not treat all with equal courtesy?



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Today is the 5th annual Blogging Against Disabilism Day. I'm so proud to be able to be a part of it.



Please take some time to click on the picture below, visit some of the participating blogs and give your support.



Best to all,



ATM

Blogging Against Disablism Day, May 1st 2011

Friday, May 01, 2009

Sometimes You Just Gotta Say...


Today is the 4th Annual Blogging Against Disabilism Day.

For a couple of weeks I've been poking around in what happens to pass for my brain these days, trying to come up with a topic mined from disabilism experiences we've had in the past year.

This experience? No, too personal.

That experience? No, too sad.

What about this one? No, way too mundane.

To be perfectly honest, it's been a pretty boring year on the advocacy front in the Attila household. My killer bunny slippers have been dying a slow death from the lack of butts to kick.

Trust providence to furnish a perfect opportunity at the perfect time.

Now how would I title this? Asshat of the Week? You're a Douchebag? TLPWSFB (The League of People with Sh*t For Brains)?

All too harsh, in my opinion. Your mileage may vary.

So I'm just going to say...

WTF?


WTF were you people thinking?

Ramco Primary School in South Australia had a worthy idea to raise money for a program in Bangladesh that repairs cleft lips and palates in children.

All well and good, and very philanthropic. But as you know, the road to hell is paved with good intentions.

So they sent out a newsletter announcing that May 29 was going to be "Dress Like a Disabled Person Day."

"There will be prizes for the best students dressed as a person with a disability. Get your thinking hats on and see what disability you can represent!"

Here's a great big steaming bowl of WTF? With raisins on top!

When they mention "prizes" does that mean they'll be categories? Like for "most realistic" (where some soccer mom actually catheterizes her kid to win because you know, people are weird that way) or "best accessories"?

Do the accessories have to be something you can carry---like crutches----or do they have to be somewhat attached like a g-tube or a colostomy bag? Will there be extra points for big accessories like a chair or an iron lung?

Snarkiness aside, this obviously begs an answer to the question, "how exactly do people who have disabilities dress?"

So I asked my Little Guy. For those of you who aren't familiar with the characters who share my life, my youngest son is 19, has Autism and some cognitive deficits. I call him Little Guy here, although he really isn't very "little" any more. ;-)

If you were dressing up like for Halloween as a person with a disability, what would you wear?

He thought about it for a minute. "I'd take a shower and brush my teeth first. And comb my hair."

Ok, what else?

"Clean underwear. I'd wear clean underwear. And a belt on my Dickies pants. And my Gap sweater. Oh, and my watch."

Is that it?

"I'd tie my shoes. And clean socks. Smelly feet are nasty."

On second thought, maybe "Dressing As a Disabled Person Day" isn't such a bad idea after all.

For one day of the year all the students will turn up clean and fresh-smelling, well-groomed, stylishly dressed and on-time.

What's not to like?
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Please take a little time to check out all of the wonderful bloggers who are contributing posts today! Click on the link at the top of my post to be taken to the list.

Have a wonderful weekend!

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P.S. at 11:15pm.

Oh Golly. I know that BADD is winding down for the day, but I went back to the original article (the link is posted above) and simply must say again,

WTF?

While many of the commenters found the whole idea of
Dress Like a Disabled Person Day" repulsive, there were plenty who had the sentiment of:


"Jeez. Just one innocent error in judgement by some normal kids trying to do something good for the school and all the cripples come out of the woodwork crying foul. It's not such a bad idea and if it raises awareness and raises funds for non normal people then let them do it!"

So much so wrong in so many ways.

Peace,

ATM

Thursday, May 01, 2008

Blogging Against Disabilism Day 2008...Little Pitchers Have Big Ears

Hubby and I have always tried to be careful about what we discuss in front of the guys, because you never know what might be repeated at a future date (and at the worst possible time).

When we were kids, my older brother--the smartypants--fancied himself as the joke expert in the family. Whenever anyone ELSE would tell a joke, he'd retort, "That's as old as my grandma, and she farts dust!"

Needless to say, when Grandma came to visit and older brother was trying to entertain her with his wit, that exact phrase came back to haunt him when it popped out of my 6-year-old brother's mouth in response. Ouch!

Little pitchers and all...

Some months ago, my ex-husband asked for a copy of Little Guy's medical records and evaluations. His oldest in his second family was having some developmental issues and was being evaluated for Asberger's Syndrome (which is a form of high-functioning autism).

After zipping him off his copies, I talked about it with Hubby. I was a bit perplexed that ex didn't want a copy of Big Kid's records as well, especially since there have been many instances of ADHD being misdiagnosed as Asberger's and vice versa, and there is a strong family history of ADD/ADHD. In fact, many of ex's son's symptoms mirrored Big Kid's at that age----impulsivity, running amok, defiance, inability to sit still, lack of attention, etc.

We went on to discuss Big Kid and where he's at now at the age of 21. The med regimen he started last August has been a great combination---the new stimulant he takes for ADHD doesn't set off his bipolar and make him manic, and he hasn't had a rage attack in months. Fortunately (or unfortunately) it hasn't dulled his personality---he's still the same ornery, contrary cuss he's always been.


Or as we say from time to time between ourselves---"there IS no pill for a$$hole".

So Little Guy comes home from school the other day, and we chat while we're making dinner.

"Did you know that Hot Cutie (his girlfriend) has a disability?"


He was agog.

Well, Honey, so do you.

"You mean I don't have autism? I have a disability instead?"


Eek. This needed some sit-down time. I tried to explain that the term disability encompasses a wide range of conditions, while the term autism was more or less specific. He has autism, and so does Hot Cutie. His friend XXXX has a physical disability and uses a wheelchair. His brother Big Kid has a disability which is completely different (didn't want to get into all of the specifics so I left it at that).

Then I asked if he understood what I was trying to say.

He was thrilled that it all clicked for him and he nodded enthusiastically.

"I have autism and it's a disability. Hot Chick has autism and it's a disability. Big Kid has a disability too.

...Mom, does Big Kid have A$$holeberger's Syndrome?"

Aiiighhhhhhh!!!

Gonna go wash my mouth out with soap now.


Carol Brady would be so ashamed.

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I originially posted this on Disaboom a few months ago, but brought it back for Blogging Against Disabilism Day 2008. Check out some of the fabulous bloggers who are participating!