Sorry I haven't written in a while, but dammit, I'm just pooped.
Right after Christmas, we scheduled a myriad of tests for Big Kid. Well, I mean we scheduled them months ago, just wanted to do them after the holidays. One year after his H1N1 crisis, he's still on oxygen 24 hours a day. There are many reasons why this may be happening, ranging from pulmonary hypertension to intensive scarring of his lungs. So for the last two weeks, he's been in and out of the hospital and imaging facilities. He had an allergic reaction to the contrast dye they use for CAT scans, and boy-oh-boy, wasn't THAT fun! Not!
We were able to FINALLY get him switched on the insurance----it actually wasn't the insurance company's fault really---it was his bio dad's company that was causing us the problem. Right after he was released from the hospital last year, they said he had to continue with college to be insured. That last spring semester was a nightmare.
Big Kid took two classes online. Thankfully they were review classes (nothing wrong with his long-term memory), and his instructors were on board. Even so, he struggled and barely passed. He has significant processing problems, and was only able to complete a portion of the classwork. Luckily, since they were review classes and he maintained information he had learned before, he was able to do fairly well on the tests, which pushed him over to the "pass" section.
However, he'd never be able to accomplish that for any other classes, but it gave us time to gather "evidence" to switch him from "dependent student" to "permanently disabled". Whew.
So last fall, he wasn't in school. But this is what he's been doing:
Walking every day with his tank. He's committed to getting better physically.
A couple of months ago, his psych changed some of his meds. Some of what he's been taking has made him gain an enormous amount of weight over the years, and he was in a pre-diabetic condition. He's lost 40 pounds since July.
Big Kid has always been my "glass half empty" kid, while Little Guy is the exact opposite. Strange to think they came out of the same womb. ;-)
He started on Abilify about two months ago, and the difference is amazing. For the first time in his adult years, Big Kid has been thinking positive, and working towards improving his life. He's been working on all the goals set with his cognitive therapist, and even joined a church.
Not going to get into all the church stuff, but in my opinion, getting involved in things outside himself is a big huge plus for him.
Got more going on, but just wanted to send an update.
Catch up with you all later, Gators!