Touching Base on Big Kid

Big Kid is finally on the mend again after the latest crisis.

Here is the recap:

3 times in the emergency room in a month. First trip to the ER (he was coughing up blood and couldn't breathe), was down in the city, and he was diagnosed with bronchitis. Even though they had his medical records there on hand (from his H1N1 crisis), they didn't do any swabs, blood tests or apparently scope down his throat. Sent him home with a prescription and told him to follow up with his doctor in 5 days.

Admitted to the hospital twice. First time up here at our small regional medical center, four days after going to the ER in the city, and they actually did tests in the emergency room and discovered he had Mono. And his throat was obstructed from swelling of tonsils, adenoids and lymph nodes. Kept him for a couple of days because he was really sick and couldn't breathe. Sent him home with a bi-pap breathing machine and instructions. Second time we took him down to the hospital in the city, where he got a tonsillectomy to make room for his airway.

So here is the aftermath. LOL

I was with him the day of his surgery. He was so wiped out that he was in a hospital bed with just a face-mask and completely unconscious. From the lack of sleep for 4 days or so, I thought, because he was on no medication except for his psychiatric meds. He was so out of it that he turned over and pulled the IV out of his arm and never felt it. Because he was going into surgery in about 5 hours, the nurses decided to wait until then to replace it.

We had to shake him up several times to get him to respond and sign some papers (one was the Hippa form that said the staff could share his information with me because he was an adult). At that time, I informed the nurse that Big Kid was wearing extended wear lens contacts that needed to be removed before surgery. She wrote down on his chart "lenses removed" and then somebody came in and said the surgeon was on the phone and ready to talk to me. So I went to talk to him about the procedure.

The next day in the ICU, after the surgery, the nurse said to me----"I've been reading his chart and the amount of risperdone (an anti-psychotic the kid takes) seems to be high. Can I go over it with you?"

When the kid was admitted, Hubby brought all of his pill bottles so they could write down his meds and dosages. Turns out the admitting nurse misread the risperdone dose and they were giving him twice what was prescribed. And his original dose was pretty freaking high to begin with. No wonder he was practically comatose!

The day the Big Kid was released, we waited all day for the surgeon to sign off. By 6pm, the staff ascertained that the doctor wasn't even working that day, and the on-call didn't have any orders to check the Kid whatsoever. That evening, at 8pm, on a FRIDAY night, as Hubby was checking the kid out, his nurse said, "by the way, Big Kid has MRSA. Here is a handout about it, and you need to follow-up with your doctor."

WTF? Like our doctor has office hours on the weekend?

MRSA is a antibiotic-resistant staff infection that can be deadly. The handout said that 40% of patients in hospitals catch it and that it is very contagious. It explained that people can get "colonized" with it, but not be "infected". WTF does that mean?

After a weekend of quarantining the kid to his room (such an easy task---NOT!), we went to see the doc on Monday. Yes, he had MRSA in his nose and throat. He also had a urinary tract infection. Joy. Got meds for both.

On Tuesday, it occurred to me that the Kid prolly wasn't seeing too well, and asked him if he needed help in putting in new contacts. He said he was fine.

THEY NEVER REMOVED HIS CONTACTS BEFORE SURGERY! Damnit.

Since the contact lenses were fairly new (in just a couple of weeks, they're 30 day lenses and expensive), we decided to let everything be, since the chance of him rolling them back to the back of his eyeballs while under general anesthetic was practically nil by now.

On Thursday, he woke up with a major oozing infection in both eyes. gah!

During this time, with all the test results, etc, it became clear that Big Kid simply cannot stay up here in our home for extended periods until his lung problems sort themselves out, if they ever do, because of the high altitude. Kitty's home, which is actually her mother-in-law's home, is not a safe place for his breathing issues because of a long-term mold problem (also, the MIL had a cat that has since died that pissed all over everything and no matter what Kitty has tried you can't get the stank out of unsealed hardwood floors unless you sand them down and seal them).

I'm NOT going to co-sign another lease for him in an apartment after the last fiasco, and we simply can't afford to buy a house or anything like that for him.

So we purchased a mobile home in a very nice park where Kitty's parents have lived for the past 25 years. During the last week we've had a crew in there customizing it for his needs (blowing the air system out, tearing out the carpet and replacing it with tile, painting, etc). It's a lot closer than Kitty's house was, so we can get there within 30 minutes if he needs us.

Kitty is going to close down the house and move with him.

We're also in the process of having an assisted-living person come in and help him when she has to work. He can't be home alone for more than a few hours at a time.

I'm just heartbroken to say that our family doc and Big Kid's Neuro-psych don't feel like he's capable of making any medical or financial decisions on his own, due to the damage incurred by oxygen deprivation to his brain.

This is something we're going to have to be thinking hard about.